January 26, 2012 - Setting Up Help

So my dear sweet friends have helped me get up a care calendar and I am so appreciative. Special thanks to Brenda Debor, Bobbie Kerr , Monica Hodges, Jennifer Chavez, and Rebecca Skinner for all the help with discussing and trying to figure things out. I love you guys!

So here’s the latest. I had chemo on Wed. and my friend Kristen Carroll came up to visit for my sit and sip time (smoothies) which was great. 11:00 – 1:30 is much better for someone to visit as I get tired with the Benadryl I get at usually around 9:30 or 10. I was actually sleeping until almost 12, but as she is one of our school’s tutors she was patient and got some work done for Friday’s classes.

The doctor agreed to give me a test run and let me try to forgo the standard weekly injection to increase WBC this week and so I am super excited! If my WBC stays above 4.0 then I can live without the shot for 9 more weeks! The shot is worse than the chemo and it hurts my bones and there really isn’t any medicine that we have tried at this point that has been able to help enough. The doctor also told me to get used to Hydrocodone, as I’ll need to take it for at least a year.

This week I should start to lose my hair. I am hoping I don’t end up looking like Gollum from the Lord of the Ring movies – ha ha ha! I went with my friend Susan Lewis to try on wigs on Tuesday and well they are really expensive! The one I liked the best was $450!, and so we sent a picture to Mark but he wasn’t impressed, and so I’ll need to take him with me sometime over the weekend I guess. I can’t even imagine what that experience will be like. I think that we are both gonna have to get used to the fact that I will not look like me. Wigs are usually straight hair as that way they are easier to care for, and so that in itself will be a change. The wig I liked the best came in a dirty blond look and so I figure what the heck – it’s a change. Pray all goes well I need to get this all figured out as I am sure that it will be an emotional experience to lose my hair and I don’t want the added stress of not having a wig that I like and feel comfortable in.

Last week was difficult as I felt pretty yucky at least 6 days. I am hoping that this week will be better. My weeks are now Wed – Wed, since that is when I have chemo and that changes everything. We are taking things day by day and so we’ll see what tomorrow holds.

Blessing: I don’t have to have the shot this week and my 2 year old runs around the house singing the song from Queen, “We will, We will Rock You” Then my intelligent older children explain that correct grammar is “We Shall Rock You”. How funny is my life?